Tamara and Irenah’s Story
At a well-baby check-up, Irenah’s pediatrician noticed that the soft spot on her head had shifted and wasn’t symmetrical. He voiced his concerns to Irenah’s mom, Tamara, and suggested she take Irenah in for a CT scan to rule out craniosynostosis. Tamara went home, looked up craniosynostosis online and became terrified. “My advice for moms,” she said, “is to listen to the medical professionals first. Get a diagnosis and then do your homework. I was so scared by what I saw. My mind took me to some pretty dark places and, it turns out, it was all for nothing.”
Irenah was diagnosed with plagiocephaly. At the first consultation, the orthotist, Liz, measured the asymmetry in Irenah’s head. “She told us a normal range for asymmetry was a 0-3, but Irenah’s was a 12. We knew she needed cranial band treatment.”
Prior to being fit, there were a lot of concerns. “Initially, my husband and I didn’t want the stigma that seems to follow infants with helmets,” Tamara shared. “We worried that people would think Irenah had to wear the band because there was something mentally wrong with her. I also didn’t want people to think that I didn’t hold her enough, because that was not the case. My personal fear was that I did something wrong as her mother.”
Tamara learned about how common plagiocephaly is from the materials that Hanger Clinic provided, and that eased her anxieties. She was immediately impressed with her orthotist’s straightforward and caring approach. She explained what cranial band treatment involved and answered their questions without making Tamara or her husband feel rushed. Tamara was reassured and felt more optimistic about the treatment and the potential outcomes. She followed the wear and care instructions to the letter.
Follow the Guidelines
“My advice to moms is, make sure to follow the guidelines and wear the band 23 hours a day, Tamara commented. “I believe that made all the difference for Irenah.”
Irenah only had to wear her cranial band for two months. During this period, Tamara was pleased to see that she seemed to be comfortable wearing the cranial band. “Irenah accepted it like it had been there the entire time,” Tamara said. “She never tried to pull it off, and the only time it bothered her was when we took it off to wash it. She didn’t like the sound of the Velcro being pulled apart.”
Hanger Clinic is a 10!
Tamara found some unexpected support during Irenah’s treatment from a couple she and her husband met at a local restaurant. The other couple said that their son had worn a cranial band. The couple reassured Tamara that the treatment would be successful, as was their son’s, adding that Irenah’s cranial band was “much cooler” than their son’s with the special design and detailing.
“That moment made me cry, because this mother had been through it, too, and understood exactly what we were feeling,” Tamara said. “Every mom needs to know that she is not alone.”
Tamara commented that on a 1-10 scale of satisfaction, she ranked Hanger Clinic service as a 10, the best; adding that she would gladly recommend Hanger Clinic to anyone whose child needed a cranial band. Now that Irenah’s head is perfectly symmetrical, Tamara is grateful she decided to correct the problem.
As a parent, you want the best for your child,” Tamara concluded. “We got the best from Hanger Clinic, and would not change anything. The staff was friendly and our orthotist, Liz, was always great.”